Information and advice on breast cancer and it’s treatment
Breast Cancer Care: A UK breast cancer charity which provides care, information and support to people affected by breast cancer. The website provides advice on everything from diagnosis to after treatment, including how to tell the children. The website offers information pages, booklets to download or order, a magazine to subscribe to, blogs by people affected by breast cancer, forums where people can talk to others about all aspects of breast cancer, plus a nurses helpline.
Breast Cancer Now: A UK breast cancer charity. They are fundraisers, campaigners, researchers. The website provides advice and information on breast cancer diagnosis and treatment together with comprehensive information on what breast cancer is.
Cancer Research UK: This website is not all about research but also provides plenty of helpful information and advice for people going through breast cancer. They have a good list of resources and organisations to help breast cancer patients.
Macmillan: The Macmillan website covers all types of cancers, not just breast cancer. It provides advice for all stages of breast cancer from diagnosis to life after treatment has ended. There are information pages, booklets to download or order, information about support groups near you and a nurses helpline. There is also a lot of information for people supporting someone with cancer.
Ribbon Cares: A lovely website which provides information about all sorts of breast cancer related issues from prevention, awareness, treatment, information about cancer itself, plus personal stories and blog posts. A really lovely, supportive place to explore.
Helpful information about breast cancer
Glossary of breast cancer terminology – an excellent A to Z list of terms and words you may come across during your breast cancer journey, and what they mean.
Information about breast cancer treatment – If you would like to know more information about diagnosis, tests, staging and grades of breast cancer and treatment then you may wish to download (or order a hard copy to be sent to you in the post) of the Breast Cancer Now Booklet called The best treatment Your Guide to Breast Cancer Treatment “This booklet sets out the standards of care that women undergoing treatment for early breast cancer can expect in England and Wales. It explains the diagnosis and treatment of early breast cancer, which is breast cancer that has not spread beyond the breast and armpit lymph nodes. It talks through the care that women diagnosed with breast cancer may experience.” Note that this booklet goes into quite a lot of detail about each step of the process from diagnosis onwards and is an excellent resource if you are looking for information at that level of detail.
Abcdiagnosis – Information about secondary breast cancer and breast reconstruction (whether primary or secondary). This is a website which was set up by a lady who is living with secondary breast cancer with the aim of “supporting primary and secondary breast cancer patients make informed choices with information and up to date news on treatments, breast surgeries, consultants, hospital and useful links.”
Breast Cancer Now Guide to Secondary Breast Cancer – “This guide gives detailed information on secondary breast cancer, including information on the services available in different parts of the UK. You can also watch videos of breast care nurses and women with secondary breast cancer, sharing their knowledge, advice and experiences.”
Information about breast cancer itself
The Breast Cancer Now website is a helpful place to start to learn more about what it is, stages, grades and statistics.
Macmillan Organiser is a “handy, portable tool that’s a lot like a personal organiser. It’s also a useful source of support that’s always at your fingertips. It helps you keep track of things such as your symptoms, your food intake, your appointments, your medication and much more besides. It also suggests questions to ask your doctor.” You can send off for this free organiser, or it is available as a phone app.
Macmillan Publications Directory is a list of booklets, leaflets, books and audiovisual materials for people affected by breast cancer. You can search by subject (breast cancer) and it provides a list of relevant publications – not all Macmillan.
Information about the BRCA gene and tests
BRCA1 and BRCA2 information sheet from the Royal Marsden Hospital
Information about specific breast cancer issues
Being Dense – this is a super website raising awareness about breast density.
Breast Cancer Care have a huge number of booklets covering many specific breast cancer issues. Topics range from treatment, the different chemo drugs, side effects, hormone therapy options etc. You can access the page here from which you can download or order copies of their booklets.