If you have been diagnosed with secondary breast cancer then I’d like to direct you to ABC Diagnosis which is run by the wonderful Jo Taylor and is really the go-to place for secondary breast cancer resources.
Some other resources that you might find of help are set out below:
Advanced Breast Cancer Community Information to help you and your loved ones learn more about your disease.
Breast Cancer Now Dedicated page on secondary breast cancer
BRIC Centre (Building Resilience in Breast Cancer Centre) A website providing support and advice for women with all stages of breast cancer together with a blog and FaceBook support group.
Cancer Net A list of questions to ask your medical team after a secondary breast cancer diagnosis
Macmillan Dedicated page on secondary breast cancer
Make 2nds Count A patient and family focused charity based in Edinburgh dedicated to giving hope to women and men living with secondary breast cancer. Depsite being based in Edinburgh they have a great support network across Instagram and Facebook for women everywhere.
Mary Huckle Mary is a personal trainer and Pilates instructor living with stage 4 breast cancer. Since her primary diagnosis in 2007, Mary has helped dozens of women with breast cancer, to regain and retain their fitness, before, during and after surgery and treatment. She regularly inspires others by delivering motivational speeches, sharing her own experience and talks passionately about how exercise has helped her both physically and mentally.
She’s very happy to have 1-1 conversations regarding breast cancer and exercise. Contact details are:
Instagram at www.instagram.com/maryhuckle
Twitter at @mary_huckle
Facebook at @breakthroughfitness1
Her website is www.breakthroughfitness.co.uk
Maureen Kenny – www.iamtheoneineight.com – Maureen has written some excellent blogs about dealing with the risks of recurrence/SBC from the point of view of a primary breast cancer patient. Check out Recurrence 1: So you think you know about breast cancer and Recurrence 5: How would you know it’d come back?
Met Up UK Met Up UK is the ONLY patient advocacy group in the UK. Their aim is to push and promote issues with secondary/metastatic breast cancer.
Metastatic Mammas – an Instagram support network for parents living with stage IV cancers
Secondary First A charity dedicated to raising funds for secondary breast cancer with a few resources on their website.
Secondary Sisters These are two absolutely gorgeous girls who are living with secondary breast cancer in their early 30’s. They’ve set up Secondary Sisters on Instagram and YouTube to talk about life with secondary breast cancer in your thirties and to dis-spell some myths and answer questions.
Stage 4 Deserves More – A website and Facebook support group who also send out support packs to people in the UK diagnosed with Stage 4 breast cancer. The packs include a booklet with helpful information such as, helplines, support groups, wigs/headwear, charities that offer emotional and financial support, competitive travel insurance etc.
Support for Women with Advance Breast Cancer – a FaceBook support group
Younger Breast Cancer Network On Facebook have a dedicated group for secondary breast cancer patients who are under 45 and live in the UK.
The information and content provided on this page is intended for information and educational purposes only and is not intended to substitute for professional medical advice.